National ALS Registry Now Open

Researchers hope to gain a better understanding of ALS by compiling a national database of patient information

• The Agency for Toxic Substances and Disease Registry (ATSDR) of the Centers for Disease Control and Prevention (CDC) has opened the National ALS Registry at www.cdc.gov/als.
  
• By compiling a national database of information, the ATSDR hopes to learn more about the incidence and prevalence of ALS, how the disease develops, and what types of treatments and interventions are beneficial.
  
• People with ALS can enroll themselves and complete surveys about their and their families' health histories, as well as environmental, occupational and other exposures. Privacy measures safeguard the confidentiality of personal information.
  
  For additional information, please read the full feature on ALS News Online.